This website, designed for researchers, clinicians, policymakers and industry professionals, is a key component of the interactive nature of the DuchenneConnect vision.
DuchenneConnect provides clinical resources and research support. Registered providers have access to de-identified aggregate clinical data from the patient registry database. Researchers can perform searches of the registry in order to identify target populations for trial/study planning and recruitment.
Below you will find sample data from the patient registry.
Which diagnosis was given by the doctor?
Are devices used to help/assist with walking?
